Szanowni Państwo,
Zapraszamy na kolejny webinar na temat zagrożenia Covid-19 u pacjentów ze stwardnieniem rozsianym. Tym razem we współpracy z Sekcją SM Polskiego Towarzystwa Neurologicznego. Wśród zaproszonych prelegentów m.in. Profesor Bartosik-Psujek. Data webinaru: 07.05.2020 (czwartek), godz. 18:00. Zachęcamy do uczestnictwa. Link do wydarzenia zostanie Państwu podany wkrótce, natomiast już teraz mogą Państwo o nim informować osoby z SM, które pozostają z Państwem w kontakcie. Jeśli mają Państwo jakieś pytania, które chcą Państwo zadać ekspertom, prosimy zgłaszać je na adres: koronawirus@ptsr.org.pl
Kierujemy do Państwa również prośbę od PFRON, który prowadzi ogólnopolskie badanie pt. „Problemy osób niepełnosprawnych w zaopatrywaniu się w artykuły pierwszej potrzeby w czasie epidemii”. Celem badania jest uzyskanie wiedzy na temat potrzeb osób niepełnosprawnych w zakresie zaopatrywania się w artykuły pierwszej potrzeby oraz sposobów radzenia sobie w realizacji zakupów. Wyniki badania przyczynią się do określenia możliwych form wsparcia osób z niepełnosprawnościami w zakresie zaopatrzenia w podstawowe artykuły. W badaniu wezmą udział przede wszystkim osoby niepełnosprawne, a także instytucje i organizacje dysponujące wiedzą na tematy objęte badaniem.
W związku z powyższym w imieniu PFRON zapraszamy Oddziały do udziału w badaniu. Gwarantowana jest pełna anonimowość odpowiedzi. Wyniki badania będą prezentowane wyłącznie w postaci zbiorczych zestawień. Wypełnienie ankiety zajmie około 10 minut. Aby rozpocząć wypełnianie ankiety, należy kliknąć na podany niżej link lub skopiować go i wkleić w okienko przeglądarki internetowej. Ankietę można wypełniać do 8 maja 2020 r.
Link do elektronicznej wersji ankietyDLA ORGANIZACJI POZARZĄDOWYCH: https://ankiety.pfron.org.pl/limesurvey/index.php/44625?lang=pl
Szanowni Państwo,
Mamy już link do najnowszego webinaru, który odbędzie się w najbliższy czwartek (tj. 07.05.2020).
https://sm.streamingkonferencja.pl
Agenda spotkania „Pacjent z SM w centrum uwagi podczas epidemii Covid-19”:
18:00 – 18:05 Słowo wstępne
18:05 – 18:25 Problemy administracyjne dla pacjenta i lekarza. Jak się odnaleźć?
Prof. dr hab. n. med. Alina Kułakowska
18:25 – 18:45 Bezpieczeństwo terapii SM w dobie pandemii SARS-CoV-2
Prof. dr hab. n. med. Halina Bartosik-Psujek
18:45 – 19:05 Jak sobie radzić ze stresem?
Dr n. med. Sławomir Murawiec
19:05 – 19:45 SESJA PYTAŃ I ODPOWIEDZI (Q&A)
Zachęcamy do wcześniejszego wysyłania pytań na adres: koronawirus@ptsr.org.pl
Zapraszamy do uczestnictwa i prosimy o przekazanie informacji Państw członkom.
Pozdrawiam serdecznie,
Dominika Czarnota-Szałkowska Rada Główna PTSR
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