Szanowni Państwo,
W aktualnościach m.in. o nowych składach ukonstytuowanej RG i KR PTSR oraz petycji ws siponimodu.
Z życia PTSR
1. Informujemy, że w niedzielę 23.01.2022 odbyło się pierwsze posiedzenie RG PTSR oraz KR PTSR.
Rada Główna PTSR ukonstytuowała się w następujący sposób:
- Tomasz Połeć RG PTSR – Przewodniczący RG
- Agnieszka Andrzejczyk z Oddziału Radom – Wiceprzewodnicząca RG
- Krzysztof Kaczmarek z Oddziału Konin – Wiceprzewodniczący
- Katarzyna Adamczyk-Drożyńska z Oddziału Sławków
- Adam Kaduczka z Oddziału Zawiercie – Sekretarz RG
- Krystyna Podlasek z Oddziału Łódź
- Alina Machuderska z Oddziału Warszawskiego
- Iza Sękowska z Oddziału Wielkopolska
- Daniel Litwiński z Oddziału Pomorskiego – Skarbnik RG
Główna Komisja Rewizyjna RG PTSR ukonstytuowała się następująco:
1. Grażyna Błażejewska z Oddziału Konin – Przewodnicząca KR RG PTSR
2. Eugeniusz Błachnio z Oddziału Warszawskiego (rezygnacja z funkcji z dniem 17.01.2022r.)
3. Jan Wróbel z Oddziału Warszawskiego – Wiceprzewodnicząca KR RG PTSR
4. Małgorzata Kamoda z Oddziału Zawiercie
5. Dariusz Łaski z Oddziału Nadbużańskiego6. Anna Sałek z Oddziału Warszawskiego – Sekretarz KR RG PTSR
2. Petycja ws siponimodu:
Zwracamy się z Apelem ws siponimodu!!
Podpisz petycję w sprawie refundacji leku siponimod dla pacjentów z wtórnie postępującą postacią stwardnienia rozsianego! Od wielu miesięcy brak jest decyzji Ministerstwa Zdrowia w tej sprawie. Czas działa na niekorzyść chorych. Wiele osób, które z nadzieją czekają na ten lek, nie będzie mogło z niego skorzystać, ponieważ w czasie oczekiwania na refundację przestaną spełniać kryteria kwalifikujące do terapii. Ich stan zdrowia z dnia na dzień się pogarsza. Poprzyj nasz wniosek o przyśpieszenie procesu decyzyjnego i refundację siponimodu kierowany do Ministerstwa Zdrowia!
https://www.petycjeonline.com/petycja_w_sprawie_refundacji_siponimod?fbclid=IwAR2nv8xqOA-8TCSfHoKM6E9YDnbGE46icWcSZcbehlm3di8qMMpNHGxzqqs
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