Szanowni Państwo,
W aktualnościach m.in. o nowych składach ukonstytuowanej RG i KR PTSR oraz petycji ws siponimodu.
Z życia PTSR

1. Informujemy, że w niedzielę 23.01.2022 odbyło się pierwsze posiedzenie RG PTSR oraz KR PTSR.

Rada Główna PTSR ukonstytuowała się w następujący sposób:

  1. Tomasz Połeć RG PTSR – Przewodniczący RG
  2. Agnieszka Andrzejczyk z Oddziału Radom – Wiceprzewodnicząca RG
  3. Krzysztof Kaczmarek z Oddziału Konin – Wiceprzewodniczący
  4. Katarzyna Adamczyk-Drożyńska z Oddziału Sławków
  5. Adam Kaduczka z Oddziału Zawiercie – Sekretarz RG
  6. Krystyna Podlasek z Oddziału Łódź
  7. Alina Machuderska z Oddziału Warszawskiego
  8. Iza Sękowska z Oddziału Wielkopolska
  9. Daniel Litwiński z Oddziału Pomorskiego – Skarbnik RG

Główna Komisja Rewizyjna RG PTSR ukonstytuowała się następująco:
1. Grażyna Błażejewska z Oddziału Konin – Przewodnicząca KR RG PTSR
2. Eugeniusz Błachnio z Oddziału Warszawskiego (rezygnacja z funkcji z dniem 17.01.2022r.)
3. Jan Wróbel z Oddziału Warszawskiego – Wiceprzewodnicząca KR RG PTSR
4. Małgorzata Kamoda z Oddziału Zawiercie
5. Dariusz Łaski z Oddziału Nadbużańskiego6. Anna Sałek z Oddziału Warszawskiego – Sekretarz KR RG PTSR

2. Petycja ws siponimodu:

Zwracamy się z Apelem ws siponimodu!!
Podpisz petycję w sprawie refundacji leku siponimod dla pacjentów z wtórnie postępującą postacią stwardnienia rozsianego! Od wielu miesięcy brak jest decyzji Ministerstwa Zdrowia w tej sprawie. Czas działa na niekorzyść chorych. Wiele osób, które z nadzieją czekają na ten lek, nie będzie mogło z niego skorzystać, ponieważ w czasie oczekiwania na refundację przestaną spełniać kryteria kwalifikujące do terapii. Ich stan zdrowia z dnia na dzień się pogarsza. Poprzyj nasz wniosek o przyśpieszenie procesu decyzyjnego i refundację siponimodu kierowany do Ministerstwa Zdrowia!

80 thoughts on “AKTUALNOŚCI PTSR”

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